How is Dignity Experienced and Promoted by Patients that Suffer from Head Injuries or Patients Suffering from Multiple Sclerosis?Name : Dr. Synnøve Caspari
Affliation : Associate Professor
University : University of Oslo
Country : Norway
The aim was to find how patients suffering from head injuries or patients suffering from Multiple sclerosis managed to maintain their dignity in a rehabilitating situation. It was a project where we asked the patients on their experiences, we asked the health care personnel what they considered important in their care of the patients and also we asked next of kin to patients suffering from Multiple sclerosis how they felt that their dignity was maintained.
Methods and Materials:
The project was carried out in 2004 – 2007. Data was collected by interviews of patients in both groups and relatives /next of kin to patients suffering from MS and health personnel. The study had a hermeneutical design.
The patients promoted what they understood by the notion ‘dignity’ and what they saw as important to them in order to maintain their dignity. Respect, autonomy, information and trust was some of the findings.
According the patients and the health personnel it is very important to promote and maintain the dignity in the life of patients suffering from head damages, Multiple Sclerosis and also for their next of kin.
Synnøve R. Caspari is an Associate Professor at the Oslo University College, Faculty of Nursing. She is Cand. philol. Her subjects are mainly Philosophy, History of ideas, Ethics, Pedagogic and the method of ‘problem based learning’. Her Ph.D. is in Health and Caring Science, from Åbo Akademy University, Department of Caring Science, Vasa Finland. The thesis is called ‘The golden Section’, the aesthetic dimension in health care as an ethical obligation and a source of health.? She has participated at several conferences and written articles on subjects within philosophy, aesthetics, ethics and professional secrecy. Dr. Casparis’ currant research is an interdisciplinary Scandinavian project called: ‘A life in Dignity’.